Acceptance study on data sharing in AI-supported healthcare services published
20. January 2025
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3 minutes
An acceptance study was conducted as part of SmartLivingNEXT. It examines how uncertainties regarding data protection and the concept of “AI reciprocity” influence users’ decisions to share their data with AI-supported health services. The result: transparent communication and emphasizing collective benefits can increase users’ willingness to share their data.
With the help of an experiment, a research team from Ludwig-Maximilians-Universität München (LMU), a consortium partner in SmartLivingNEXT flagship project, showed that increased transparency about data usage reduces uncertainty and increases the willingness to share data, while data protection uncertainty significantly reduces this willingness. The researchers use the term “AI reciprocity” to describe this. It describes the benefits that can be achieved by sharing data not only for oneself, but also for others, as the quality of services is improved for all users. For example, AI reciprocity can have a positive impact on data sharing. However, social distance, i.e. how close or similar users feel to others, had no significant influence on the perceived relevance of AI reciprocity. The study provides important indications of how trust and willingness to cooperate can be promoted in data-based applications and illustrates that people share data not only for selfish reasons, but also out of a desire to help others.
Acceptance study with 240 participants
The results are based on an online experiment that was conducted in a 2×2 factorial design. The 240 participants were randomly assigned to one of four groups that differed in the dimensions of “data transparency” (high versus low) and “social distance” (close versus distant). They were asked to decide whether they would share different types of sensitive data, such as health and movement data, with a hypothetical AI-powered healthcare service. In addition, questionnaires were used to measure perceptions of transparency, privacy uncertainty and the benefits of AI reciprocity. The results were analyzed using structural equation modeling (SEM), which identified causal relationships between the variables studied and tested the central hypotheses.
Professor Johann Kranz, Professor of Digital Services and Sustainability at LMU: “The results suggest that companies in the healthcare sector can increase users’ willingness to share data by communicating transparently and emphasizing collective benefits. However, data privacy uncertainty remains a significant barrier that should be addressed through clear and understandable information about data use and protection. Overall, the study provides valuable insights into the balance between data privacy and the potential benefits of data sharing in a commercial context.”
Research team receives “Best Paper First Runner-Up” award
The LMU research team, consisting of Professor Johann Kranz and co-authors Alexander Zieglmeier and Tawfiq Alashoor, also received the “Best Paper First Runner-Up Award” at the International Conference on Information Systems (ICIS). The ICIS took place from December 15 to 18, 2024 at the Marriott Marquis Queen’s Park in Bangkok, Thailand.
Listen to the article (in German)
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Flagship project
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Central documents for SmartLivingNEXT
The white paper contains the guideline and reference framework for the future technical development of the SmartLivingNEXT Dataspace and the desired governance structure. It was created with the collaboration of teams from German Research Center for Artificial Intelligence (DFKI), the Research Association for Electrical Engineering at ZVEI e.V., Ludwig-Maximilians-Universität München (LMU) and Materna Information & Communications SE. You can have the white paper sent to you as a PDF. Please contact our project office at projektbuero@smartlivingnext.de.
The document is intended as a structuring investor perspective and orientation framework, not as a final business plan, and analyzes the possible roles of potential investors. It was written in collaboration with Michael Schidlack, Research Association for Electrical Engineering at ZVEI e.V., Dr. Rahild Neuburger, Ludwig-Maximilians-Universität München (LMU) and Lars Thomsen, future matters AG. You can have the document sent to you as a PDF. Please contact our project office at projektbuero@smartlivingnext.de.
Das Dokument erläutert im ersten Teil (Governance & Organisation) SmartLivingNEXT als föderiertes Datenökosystem und beschreibt die Rollen, Verantwortlichkeiten und Entscheidungslogiken. Der zweite Teil (technische Architektur & Datenraum) beschreibt, wie diese Governance technisch umgesetzt wird. Es entstand unter Mitwirkung von Michael Schidlack, Forschungsvereinigung Elektrotechnik beim ZVEI e.V., Dr. Rahild Neuburger, Ludwig-Maximilians-Universität München (LMU) und Fanni Vespermann, Materna Information & Communications SE. Sie können sich das Dokument als PDF zusenden lassen. Please contact our project office at projektbuero@smartlivingnext.de.